Scleroderma Walk in Historic Allaire Village on June 8, 2013, to Raise Awareness and Funding for Research
Monday May 20, 2013
By: Christine Gaydos
The 13th Annual “Stepping Out To Cure” Scleroderma will be held in Historic Allaire Village on Saturday June 8, 2013. Over 400 scleroderma supporters will take part in this family friendly event including T-shirts, refreshments, raffle baskets, awards, and entrance to Allaire Village after noon. Registration is available at www.scleroderma.org/shorewalk or in person on the day of the event and begins at 9:30 AM with the walk scheduled for 10:30 AM.
Misunderstood, misdiagnosed, and underfunded. Far too many families in South Jersey understand these words when talking about scleroderma, a complicated, chronic, and life-altering autoimmune disease. Families throughout the region have been participating in the annual “Shore” walk for scleroderma for the past 13 years. The Decker Family walks in memory of their sister, Mary Jane, who lost her battle with scleroderma in 1999. The Scleroderma Walk is now their annual family reunion gathering 4 generations of family from 4 different states. The Waltermire Family walks in honor of their mother, Doris, who lives with scleroderma affecting her daily life. Last year 50 family members and friends participated in the Shore Walk along with Doris. Altogether 425 walkers participated with the same goal – create more awareness of scleroderma and raise research dollars that will find better treatments and eventually a cure.
For more information about “Stepping Out To Cure” Scleroderma in Historic Allaire Village or to make a donation go to www.scleroderma/shorewalk or call the Scleroderma Foundation Delaware Valley Chapter 856-779-7225 or firstname.lastname@example.org.
Every Step Counts – Educate, Advocate, Cure
Scleroderma – misunderstood, misdiagnosed, underfunded – is a chronic connective tissue disease, classified as one of the autoimmune rheumatic diseases. The disease affects over 300,000 people across the United States, 80 % which are women 20 to 50 years of age. The disease is complex and painful, and it has the potential to affect every organ in a person’s body. The disease can be localized or systemic. If it is localized it affects mainly the skin by hardening the skin. If it is systemic it can also affect organs by hardening the organs. The cause is unknown, and there is no cure. The Scleroderma Foundation Delaware Valley Chapter (SFDV) is a 501(c)3 nonprofit organization that supports scleroderma patients in 3 states, Middle and South New Jersey, Eastern Pennsylvania, and Delaware, partnering with 3 centers, the Scleroderma Centers at the Hospital of the University of Pennsylvania, Thomas Jefferson University Hospital and Robert Wood Johnson University Hospital. The SFDV relies on the support and generosity of donors to support our community and our 3-fold mission of support, education and research. The National Scleroderma Foundation and its chapters are the leading private source of scleroderma-related research and allocates $1.2 million annually through the Foundation’s research program.